In which I feel a bit sorry for myself

Looking back through my ManikPixi posts, I see that the last time I wrote anything for this blog was back in May last year - well over a year ago now. I started my other blog, Pretty Clever, that April and found myself a niche in blogging about, well, pretty things. My readership grew, I scored a couple of guest posts on other blogs and even got sent free stuff to review, and I started to feel that in some small way I was fulfilling my only life-long dream: to write. (Well, that and to be a laser gun-wielding, alien butt-kicking agent for a super secret government department responsible for kicking alien butt. I'm nothing if not imaginative.)

Life was looking pretty good - The Eccentric English Boyfriend and I had moved in together, my kids were growing up gorgeous, my ex-husband and I had a good (if occasionally awkward) friendship and the severe depression and anxiety disorder which I'd battled daily most of my adult life, and particularly since my separation, was mostly under control (even though an aborted attempt to lower my daily dosage of drugs reminded me that it was still there). Things really were looking the best they'd looked for a very long time.

Then one day in December last year my toes went tingly. A relatively innocuous thing at the time - I'd been wearing (very pretty) high heels quite a lot in the previous few days and put it down to the after-effects of the burning ball-of-foot pain that anyone who wears high heels will be familiar with. But then on a Wednesday morning - the day before we were due to fly down to Dunedin for my foster-brother's wedding - I was washing my, erm, delicate bits in the shower and realised that they were numb. Not good. Not good at all.

Scary thoughts pushed themselves into my head, and I pushed them back out again and flew to Dunedin with EEB and the kids.  I threw myself into preparing for the wedding, giving manicures to family members and enjoying being back in the arms of my foster family. And all the time the numbness and tingling spread. Upwards from my toes and downwards from my butt, eventually meeting at my knees, I began to have difficulty placing my feet properly when I walked and had the disturbing sensation that I constantly needed to poop when in reality I couldn't. Not that I had no need to, I just literally couldn't.

The wedding was lovely - utterly utterly lovely. The whole weekend was. But in downtime back at our motel unit I was searching the internet, listing my symptoms and reading the list of possible illnesses and all the time in the back of my mind a voice was saying "I have Multiple Sclerosis". Which of course came up in the search results, but I was determined that would not be the answer. Determined that the disease which had killed two women of my extended acquaintance at a relatively young age* was not what I had.

We returned to Auckland on the Sunday evening, and Monday I saw my GP who looked puzzled, scheduled an appointment with a Neurologist for that Wednesday and told me that if my symptoms worsened before then I was to go straight to A&E. By that night I was terrified - I'd tried as hard as I possibly could for several days to not think too much about it but I could no longer avoid it. I knew there was something wrong with me, so that night I got EEB to take me to A&E where the lovely young doctor (who later told me she'd rushed me through as an urgent case because she was worried that my symptoms indicated a fast growing tumour on my brain or spine) had the MRI machine fired up in the middle of the night. It takes an hour for it to warm up, did you know? I spent an hour and a half lying in that tiny plastic tube having my brain and spine scanned and feeling very, very glad that claustrophobia wasn't amongst my list of mental health issues!

I'd sent EEB home to bed earlier - before I found out they were going to MRI me - having been told by a nurse that I was likely to be there overnight and nothing much would happen until the next morning. So I was alone when the doctor returned with my diagnosis - two lesions on my brain and a lesion on my spine indicative of Multiple Sclerosis.

Multiple Sclerosis.

The one thing I'd wanted so desperately for it not to be.

She was lovely, the pretty young doctor. She knew she was delivering devastating news, and I felt her empathy. When I told her of my acquaintances, who'd died when they were not much older than I am now, she told me of her friend who was living a healthy and happy life despite her MS, explained that my experience of it wasn't the way it always happened and that medication was improving all the time. And she did help, bless her.

I was given a huge dose of steroid tablets to take, with a few more days' worth to take home with me - the research shows that short, high doses of steroids (rather than longer term lower doses) are most effective in treatment of MS episodes - told I could go home, and to keep my Wednesday appointment with the Neurologist. EEB was slightly irritated to be woken by my phone call in the middle of the night - not at me but at the nurse who had told him I'd be in overnight - and I think I sounded normal on the phone until I said "I've got a diagnosis". "What?" he asked. "Multiple Sclerosis" I said, and burst into tears. There was silence, what seemed like quite a long silence, and then he said - very simply "Oh crap".

By the time he came to pick me up I was a mess, eyes red-rimmed from sobbing. The guy in the cubicle next to me - who was in some serious pain trying to pass a kidney stone - had quietened his moans after hearing the doctor talking to me. Let's face it, nothing is a secret when flimsy hospital curtains are the only barrier between beds. So I guess he'd had to listen to me crying.

Back at home I curled into EEB's arms in bed and sobbed myself to sleep - overcome by grief and fear and only just beginning to grasp what this diagnosis meant.

The appointment with the Neurologist was at its best unhelpful and at its worst distressing. He was offhand with me and made vague noises about how it was most probably MS but I might never have another episode. I came away feeling somehow guilty that I'd made such a big deal about it. Later I read that it's not uncommon for newly diagnosed sufferers to receive this advice from a Neurologist - that there's a school of thought that says it's more helpful and reassuring to the sufferer to think in this manner. Which is of course utter bullshit. The MS patient who convinces themselves they'll never have another episode is only going to be more devastated when the next episode happens. Sure there's a lot to be said for optimism, but not at the expense of medical reality.

After seeing the Neurologist I almost didn't contact the local Multiple Sclerosis Society. I thought that maybe if he was right and I never had another episode I'd be wasting their time. But then I remembered the sight of those three lesions on my MRI - those three white blobs that had no right to be where they were - and I thought of the daily reality I was facing with difficulty walking and constant overwhelming fatigue, and I knew that whatever platitudes he had used I was facing something huge and I needed support right then and there. And so I rang them, and they were wonderful. They sent around the Field Worker for my area who brought me books and pamphlets about MS and sat and chatted and played with the dogs and let me know that there was so much support available. She rings me regularly to check in, and always asks after the dogs.

She also put me in touch with the MS Nurses who work in tandem with the Neurologist and are lovely - supportive and caring and not at all offhand.

The episode passed after about a month and a half. I regained feeling in all the bits where I should have feeling, the fatigue gradually passed and with the exception of some occasional blurry vision problems which have stayed on I started to get my life back.

Except it's a different life now isn't it? Because every day, in everything I do, that thought is in my head: "I have Multiple Sclerosis". I try to keep positive, to live every day to its fullest potential and to not dwell too much on what might happen, and mostly I succeed but that thought and the fear that accompanies it never really goes away. And with it my depression and anxiety returns more often, probably understandably. So I'm less motivated, and finding less joy in the world. I've been finding it hard to get the inspiration to blog over at Pretty Clever - not that I don't want to I just can't summon the creative energy to do it.

So where to from here? Well the old adage "hey I could walk out in front of a bus tomorrow" may be facetious but it is actually true. As is "well it could be worse". Yeah, it could. It could be much, much worse. Still sucks though. But, I have a passion for life that can't be kept down. Won't be kept down. I'll just keep on keeping on. And hopefully find my blogging motivation again. Maybe even start posting here more often - who knows. It's eight months since my diagnosis, and in the last couple of days I've been having some odd little symptoms which I may totally be imagining, or may actually be the onset of another episode. Time will tell, but that's obviously why it's on my mind even more right now, and what prompted this post. It can be really scary thinking about what this often invisible disease, with its wide range of possible symptoms ranging from irritating to incapacitating, could have in store for me next.

But life doesn't just have MS in store for me. My life contains an Eccentric English Boyfriend, two gorgeous children and excessively affectionate pets. And that's just in our house - I step outside our door and there's a a big wide world out there full of cool stuff. So whatever happens from here on out I should just enjoy the cool stuff.

* The lovely MS Society Field Worker who facilitates my newly diagnosed group is quick to point out that MS doesn't, as a rule, kill its sufferers - they die from complications related to MS. They become bed-ridden and develop pneumonia, and unable to move around and clear their lungs they succumb to it. Mostly that's reassuring, except if they hadn't had MS they wouldn't have developed pneumonia, would they?

This little piggy grilled your meats

Although it's no longer barbeque weather here in New Zealand the EEB and I are thinking about buying a new barbeque in preparation for the day when the house is in a suitable state (ie renovated) to entertain. Up until now I've been leaving window shopping to the EEB, barbeques have never particularly excited me. In fact, I view barbeques in the same way I view cars - as some sort of manhood extension. My motto: the bigger the car/barbeque, the smaller the .... wallet.

But then, I saw this:



That, my dears, is the Lil' Pig grill. Check out her udders! I would presume it's not available here in New Zealand, but if it was I would totally be getting me some of that piggy action! Available from Traeger Wood Pellet Grills. The web site doesn't list the price, which presumably means it's one expensive little piggy!

Proof I'll never win the Mother of the Year award

10 Year Old Boy is exceptionally mischievous, and loves to wind me up. He knows that a surefire way to do this is to answer every sentence of mine with "why?". He can go on like this for hours, bless him. I finally trumped him the other day though. I don't remember what the conversation was about, but it went on for some time, me saying something, him saying "why", me trying not to pop, until it culminated with this:

10YOB: "why?"
Me: "well then you were born"
10YOB: "why?"
Me: "because your father and I had sex"
10YOB: *blush* ... *squeak* ... *run away*

I've never seen him leave the kitchen so fast!

Play teh cute!

I'm such a sucker for lolcats. And loldogs for that matter. I mean, cute animals, amusing captions, a way to spend hours avoiding the housework - what's not to love! And now they've gone and introduced another way for me to spend hours avoiding the stuff I'm actually supposed to be doing. In fact, two ways.



Now there are two Nom Nom Nom games. Simple, time-wasting, addictive - pull the cat's (or dog's tail), eat the noms and beat my score* - go on!

* It won't be that hard to beat my score. In fact it will be so easy to beat my score I haven't even bothered publishing it, because it was teh suck! But feel free to tell me yours, so I know just how much better you are than me!

What I've been doing

It's been a few weeks since my last proper post, so here's a quick recap of what's been happening. I have:

• Been a bridesmaid in purple, and discovered that my Jurlique Citrus Silk Finishing Powder (bought cheap at Gold Coast Duty Free last year) is worth it's weight in gold for keeping my oily skin shine free during an outdoor wedding on a hot and very humid Auckland day.
• Survived 13 Year Old Girl's first day at high school, which was more exciting than it should have been when a passing crim attempted to snatch a parent's bag, and the welcoming powhiri was drowned out by the noise of the police helicopter circling overhead searching for the would-be purse snatcher.
• Had a delightful (and all too brief) visit from EEB's mum and step-father (the Eccentric English In-Laws).
• Laughed far harder than is possibly polite at the Eccentric English In-Laws' attempts to pronounce Maori words.
• Introduced the Eccentric English In-Laws to my wonderful Foster Parents on a trip to my home town of Dunedin, and realised that I am a short person surrounded by tall people.
• Had a delightful dinner with the Foster Parents and the Eccentric English In-Laws at Speights Ale House in Dunedin, where the lamb was lovely.
• And discovered Speights Pale Ale, a light, crisp brew which has replaced Corona as my beer of choice.
• Rediscovered the breathtaking majesty that is Central Otago.
• Dined for the second time at The Bunker in Queenstown, and had it reconfirmed as my favourite restaurant ever.
• Promised the Eccentric English In-Laws that next year we will visit them - hooray for a trip to England with a stop-over in Hong Kong. 10 Year Old Boy was a little underwhelmed by the possibility, until he realised that because we're going for three weeks he'll get an extra week off school after the school holidays. Now he's positively brimming with excitement!
  
• Had a prowler in our street who scared the living daylights out of our neighbours. When I went out to investigate the presence of police cars in the street the policewoman held up a pair of knickers and asked if they were mine - I had to to tell her that none of my knickers are that, well, delicate! Turns out they were stolen off the washing line of a lady a couple of houses round, the next time I saw her I complimented her on her taste in underwear. She only has one child, she may as well wear delicate frillies while she can!
  

Oh AND, joy of joy of joys, the Eccentric English In-Laws brought over my Christmas present and you will never guess what they got me. Go on, guess ...

Ok, here's a clue. And it's just as awesome on my wrist as it looks in the picture.

Because one is never enough

The thing to do when you have a blog which you update sporadically is, obviously, to start a second blog. Which you will then update sporadically. So of course that's precisely what I've done ... Ladies and Gentlemen (well, just ladies actually because it's a blog about makeup and clothes and shoes), may I present to you my new blog, Pretty Clever.

Bully to you

I was humming Rudolph the Red Nosed Reindeer to myself this morning (somewhat out of season I know but bear with me) when a thought occurred to me that I've had a few times before: the lyrics to that carol really annoy me. Think about it, Rudolph was picked on by the other reindeer because he was different, and it was only when he performed an heroic feat that he was elevated in their eyes and they stopped bullying him. Now don't get me wrong, this is not some diatribe about the writers and purveyors of this message, which also turns up in many teen angst-ridden dramas on screen and in print. They're only writing what's already there. How many of us, on the receiving end of bullying, have fantasised about being revealed as the lead singer of a famous rock band, or an ass-kicking laser gun-wielding secret agent for a secret government agency fighting alien invasions (ok so those two particular fantasies are mine) thereby earning the respect and adulation of their former bullies?

I was bullied throughout my school years, and the truth is if I had had the chutzpah to be a rock singer or secret government agent then I wouldn't have been bullied in the first place, because bullies have an innate ability to read people and they can spot the ones like me whose body language and glances say "I have no self esteem, please just ignore me".

There was one particular girl at high school who bullied me mercilessly, both with words and occasionally more physical methods, followed by a gaggle of her friends all eager to join in the fun. I was incredibly lucky that I had a wonderful best friend who stood up for me, and formed herself and the rest of our group into an honour guard of sorts around me whenever they saw her coming across the school field. A trip to the school counsellors office in tears eventually put a stop to her bullying (what methods he used to convince her to cease I don't know, I just know my relief was immeasurable). A couple of years later, after she had left school, I ran into her one day when I was out with my father - she was the checkout operator on our till at the supermarket. My heart sank when I saw her, but she astounded me by apologising, in front of my father, for the way she had treated me. I don't remember my answer (I do remember the interrogation from my father afterwards, I'd never told him about the situation), but to this day I have the utmost respect for that girl. It took some guts to say that, in the presence of my father and the other customers, and it just goes to show that just as victims don't always have to be victims, so too can bullies change their ways - and it doesn't take an heroic act to bring it about.

Oh boy

Bizarre vignette of the day: Jessie lying on the beanbag happily chewing on a toy with Fred straddled across her back, his little legs barely touching the floor, merrily humping away.

Seriously, this is what passes for normal in our house!

It's called an elevator

Watching The Big Bang Theory last night (my current favourite), the scene in which Sheldon and Penny are having a conversation as they walk the numerous flights of stairs to their apartments. On each landing they pass the elevator doors, criss-crossed with 'Out of Order' tape. In the ad break 9 Year Old Boy turns to me and asks "Mummy, why are so many of those rooms out of order?".

My morning fix

I'm at the computer with my morning cup of coffee catching up on my blog reading (also know as avoiding the housework) so I thought I'd share a few of this morning's favourite links:

From Shoewawa, boot wearing season is over here in NZ with summer on its way, and I couldn't afford these in a month of Sundays, but I love love love these Thomas Wylde boots.



The heel, the multiple skull buckles, even the slouchiness (which wouldn't normally win me over) - available here.

From Fashionably Geek, no I haven't reversed the picture, this watch actually runs backwards. Leonardo da Vinci was left-handed (like me) and the theory is that his backwards writing was not an attempt to write in code, but rather to avoid smudging the ink as he wrote.



And it's beautiful to look at. Available at The Unemployed Philosophers Guild, the same site that carries the Dali watch I love so much.

The Boston Globe's Big Picture blog is a favourite of mine - the photo collections are always stunning, and today's Antarctica pics almost have me thinking it would be worth braving the cold to go there (I said almost, I seriously hate the cold).

(Image: Zee Evans/National Science Foundation)

And to end, something a little ghoulish. Ugly Overload has some mosquito photos that will have you reaching for the insect repellant.



And now I should start my day, but tearing myself away from the window may be a little difficult. The lady across the road has had a gardener in the last few days, and today he's out there shovelling topsoil. Young? Check. Tanned? Check. Topless? Check. Toned physique? Check. EEB looked somewhat suspicious when I tried to convince him that maybe he should go in to the office today rather than working from home. I wonder why...